Initiatives

Initiatives

Empowering Patient Voices™

“Nothing works for everyone, but everything seems to work for someone.”

That is a phrase we use often in our migraine communities. While we believe in creating an open space for patients to be heard, we also foster a community of balance. Part of our online communities involves an emphasis that those who may not have had a positive experience with a treatment do not necessarily represent the experiences that other individuals will have on that treatment. 

Our branded patient communities, Hope for Migraine and Migraine Meanderings, are where migraine patients with the strongest interest in new treatments congregate to learn, and we are the leading edge of understanding the patient mindset when it comes to new treatments in the migraine space.  

A Three-Part Initiative


Migraine is so much more than "just a headache." When we speak out about our condition and the many ways it impacts our lives, we raise awareness, help others feel less alone, and create real change. The Empowering Patient Voices™ initiative highlights the authentic depictions of life with migraine, and works to bring migraine disease "out from the shadows." Please visit our patient-facing website, Migraine Meanderings, for more details and links to the videos produced.


There are 3 ways to participate:

The Real Voice of Migraine™

A peer-to-peer video series focusing on what it is really like to live with migraine disease. 


Migraine Behind the Mask™

Social media and printed materials utilizing photographs of migraine patients and unique art to help remove the mask of misinformation.

Let's Talk Migraine™

Utilizes video to provide a space for people with migraine to share  authentic experiences.

Background



Since 2018, we have entered a new frontier of migraine treatment that has been both much-needed and much-anticipated. However, along with this new frontier, there are unique challenges to be faced. These challenges together result in poorer outcomes for migraine disease management:


  • A large, complex maze of new information to navigate, together with misinformation (often presented as evidential)
  • Lack of easy access to Certified Headache Specialists who are better equipped to manage migraine disease.
  • A communication “disconnect” between patients and healthcare professionals.
  • Misunderstanding about the importance of a holistic approach, especially bearing in mind comorbid conditions. 
  • Inadequate resources to manage the complexity and wide spectrum of migraine disease.
  • Lack of patient empowerment, resulting in reduced access to appropriate treatments and lower treatment compliance. 

Impact


Empowering Patient Voices™ encourages and supports patient advocacy from an exclusively peer-to-peer perspective through patient-driven information that is easily relatable and emphasizes connection. It creates openness to information and emboldens people who live with migraine and other headache disorders. 


The initiative reaches out to patients at any stage of their "Migraine Journey.” Using an existing social media community of approximately 15,000 highly active members, Empowering Patient Voices expects to impact 25,000-50,000 people living with migraine in the first year, and 100,000 over the first 3 years through an aggressive social media marketing plan and continued organic growth. 


If you would like more information on the Empowering Patient Voices initiative and opportunities to partner with us, please contact us to request our complete prospectus. 

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